Name: Survey
Uploaded: 2024-12-02T16:26:08.592099Z

Consent Form

Consent form 2

Yes - I understand and would like to continue

Consent 3

User guidance

What country do you live in?

Ethnicity

Further education / College (A-levels, BTEC)

Education level

Self assessed Health rating

Currently caring for partner living with dementia

Dementia type

Length time caring

Adapted NPI-Q

Support with preparing meals and medications

Supporting your partner with washing and dressing

Providing emotional support to your partner

Providing financial support to your partner

Providing activities and tasks to keep your partner engaged

Type of care

Daily hours of care

I get emotional support from friends and family

I get practical help from friends and family

I get practical help from a care provider (a home care package)

Presence of support

Anticipation (currently caring)

Current motivation scale

1. I provide care because they would do the same for me

2. I care because there is no-one else available to help

3. I care because that is my role as a partner

4. I care because my partner does not want care from anyone other than me

5. I care because my partner needs me

6. I care out of love / affection for my partner

7. To thank my partner for all they have done during our relationship

8. I care because it is what is expected of me

9. I care because my partner’s wellbeing comes before my own

10. I care because I know my partner would be unhappy in residential care

11. Caring is a duty that is a partner is responsible for

12. I care because other people might think poorly of me if I don’t provide care

13. I care because my partner is most accepting of me

14. I care because no-one can provide better care than I

15. I care because I would feel guilty if I did not

16. I care because a relationship is give and take

17. Because family and friends consider it to be my role

18. I care because of how strong our relationship is

Qualitative motivations (currently caring)

Relationship History

First marriage length

Relationship length and caregiving

Health and caregiving (not late life reparterned)

Age when repartnered

Why cohabiting

Cohabiting and caregiving

Length of relationship (not married)

Widowed / divorced / both

re-partnered caregiving open-ended

Health and re-partnering

Relo length (cohabiting)

Remarried Relationship length

Age when re-partnered (remarried)

Why remarried

Remarraige and caregiving

Why LAT?

LAT and caregiving

Option to finish early

Mild (I have found changes fairly easy for me to manage)

Moderate (I have found changes difficult at times or been moderately distressed by my partner's behaviour change)

Severe (Changes have been difficult to manage with high levels of distress for myself)

Extremely Severe (Changes have been extremely distressing and challenging to manage)

NPI (Carer distress)

Mild (My partner has not been affected much or has not been aware themselves of changes)

Moderate (My partner has been quite distressed at times, or found changes difficult)

Severe (My partner has been very distressed by changes, and found it highly challenging)

Extremely Severe (My partner has been extremely distressed by changes, sometimes daily)